Holoprosencephaly

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For Sydney: Eddie Gran's biggest recruit was daughter

Published July 5, 2009, 12:23 am, The Tennessean

Eddie Gran, Tennessee's first-year running backs and special teams coach, talks candidly about the loss of his daughter Sydney, who would have turned 10 on July 1. Sydney was born with a rare disease which caused her brain to stop developing within the first three months in the womb. She lived nearly six years.

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For Sydney: Gran's biggest recruit was daughter

Published July 4, 2009, 7:46 pm, Knoxville News Sentinel

Eddie Gran and his family didn't wait until Independence Day to shoot off fireworks. Let the rest of the world celebrate July 4th. The Grans had July 1, 2009. That's the day their daughter would have been 10 years old. Sydney Gran was born with a rare disease called Holoprosencephaly, which caused Sydney's brain to stop developing within the first three months in the womb. "Nobody ever wants to ...

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Sherwood family says goodbye to baby Leah Grace

Published July 3, 2009, 9:05 am, Portland Tribune

SHERWOOD – After surviving 99 days – much longer than doctors had anticipated – Leah Grace Jarmer, the struggling newborn with a rare and fatal birth defect, succumbed to her illness in the early hours of June 27 while sleeping in the arms of her father Luke. Since birth, Leah ...

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