Batten Disease

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Questions Linger About Health Care Limits

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Local boy gets his wish

Published July 6, 2009, 1:18 am, Bedford Journal

BEDFORD – Thanks to the Make-a-Wish Foundation, the Dainiaks, of Bedford, will have a new addition to their family in January. His name is Buzz and he is a service dog.

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14°C - Sunny Spells with only patchy cloud

Published July 3, 2009, 1:48 am, Daily Record

A HEARTBROKEN couple whose first two children were born with a deadly genetic condition have now given birth to a healthy baby girl - and have called her Joy.

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Tragedy of sisters who will both die before they're 12 years old

Published July 3, 2009, 12:32 am, Daily Mail

They are the only two sisters in Britain known to have the deadly form of the genetic disorder Batten's disease.

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Sisters with Batten's disease told they will die by age of 12

Published July 2, 2009, 11:44 pm, Daily Telegraph

Two sisters Ashleigh and Alisha Lennon have been told they will die of a rare genetic disorder called Batten's disease before they are 12.

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